About This Book

Bladder leakage, bowel leakage, overactive bladder (or OAB), light bladder leakage, fecal incontinence, stress urinary incontinence — whatever you call your misbehaving bladder or bowel — the fact is that life with incontinence is challenging.

This book provides guidance from leading experts about how to take control of your life — even when your life includes incontinence.


In addition, there are chapters on:

  • Building resiliency
  • Communicating with friends, family, and health professionals
  • Overcoming stigma
  • Urinary incontinence
  • Bowel incontinence
  • Communicating with your healthcare professional
  • Lived Experiences

Lived Experiences

Each chapter of this book is separated by a “Lived Experience” – a true, life story written by individuals from around the world, who show us how they are actively living and conquering their fears regarding the challenges of daily life with incontinence.

To read the beginnings of three of these life stories, click on Lived Experiences.

Whether incontinence is a new diagnosis or something you have lived with for years, whether your leakage is light or heavy, you will find help and inspiration within this book.

The Simon Foundation for Continence

Managing Life with Incontinence is published by The Simon Foundation for Continence. The Foundation, located in Chicago, Illinois, USA, is a 501(c)(3) corporation whose mission is: to bring the topic of incontinence into the open; remove the stigma associated with incontinence; and provide help and hope to individuals with incontinence, their families, and the professionals who provide their care.

The Simon Foundation for Continence is the world’s oldest patient-led organization devoted exclusively to incontinence. The Foundation began in 1982. Managing Life with Incontinence was the first of several projects launched during 2012, the Foundation’s 30th Anniversary year.

The publication of the book was made possible in part through educational grants from:

Astellas USA Foundation
Hollister Incorporated
SCA Personal Products